Tag Archives: cancer

sweet canadian dreams smilin’ jack…

I don’t care what colours your preferred political party are—Jack Layton was a great Canadian leader.  He was, and continues to be, an inspirational force.  Canadian pride is limitless.  It forms lumps in even the most temperate of Canadian throats.  Jack Layton knew this.  He felt this.

In the days before his death, he penned a letter to his beloved compatriots, showing his grit for life and his passion for his country.

For those of us that live in the shadow of cancer daily, every death from a cancer recurrence is a direct attack against our own survival odds.  Jack’s humble and selfless personalization and reflection to this fear in his letter moved me to tears.  He has known my fear.

“Unfortunately my treatment has not worked out as I hoped.  So I am giving this letter to my partner Olivia to share with you in the circumstance in which I cannot continue.  To other Canadians who are on journeys to defeat cancer and to live their lives, I say this: please don’t be discouraged that my own journey hasn’t gone as well as I had hoped. You must not lose your own hope. Treatments and therapies have never been better in the face of this disease. You have every reason to be optimistic, determined, and focused on the future. My only other advice is to cherish every moment with those you love at every stage of your journey, as I have done this summer.”

In his closing, Jack shared a truth.  A truth that underlines the basis of his personal victories—and can no longer be considered political agenda hoopla.

“My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we’ll change the world.  All my very best, Jack Layton”

Good night smilin’ Jack.  Sweet dreams.

~uberscribbler

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Photography Exhibit Postponed

A great big Thank YOU to everyone who has been involved with the Understanding Meets Hope Photography Project!  It has taken considerable courage for the subjects to come forward, welcome me into their homes, and have conversations with me regarding their disease, treatment and their emotional health along the way.  Some moments of the conversations have been harder than others, and at those moments these people have selflessly allowed me to photograph their feelings in order to capture some “truths” about what a diagnosis with cancer (or any life threatening disease) can mean when not covered up with humour and bravery.  To Mike, Mark, Peggyanne and Beth… words don’t seem adequate enough to express what my heart holds for you.  I came to your homes to take your photograph …and left with far more. 

I believe in this project and sometimes underestimate its importance… even if just to me.  I may have also underestimated the amount of time that should be invested and given to people considering this project for themselves.  Since there is no rush, l have recently decided to postpone the exhibit date in order to find a few more subjects for the final display.  In the end I want to be comfortable knowing that I did everything I could to get the word out and offer the opportunity to everyone.

Keep checking back for a new Exhibit date! …and thanks for being along for the ride. 

~uberscribbler

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Muse Photography on Cable14 Coffee Break TODAY!

coffeebreakThe interview with Mike Fortune from Cable14 will be airing today at about 25 minutes after most hours and again on the 9th at about 5 minutes before most hours.   The producer will be dubbing me a copy and I hope to have that feed onto the website for those of you without basic cable services.  Special thank you to the Associate Producer, Kathleen Foster, for all her sincerity and warmth.

This weekend I’ll be taping a feature segment with Cable14 for their LINKED show!  Stay tuned for airing details.

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A Statement of Need is a Statement indeed!

insanity1I have spent a considerable amount of time exploring the link between physical healthcare (the body) and psychological healthcare (the mind) as it pertains to the Canadian government healthcare system.  All of the mandates from the Minister of Health right on down is about protecting the health and safety of all Canadians.  I may need to check the Minister’s handbook for their definition of health to be sure, but I think I’ve managed to establish a gap. 

Amidst a sea of body do-gooders, there is one organization or unit that promotes mental health, aiming to maintain and improve positive mental health and well being for all of the population.   You just have to be mad dog crazy in order to use these resources.  I mean eyeball rolling and frothing at the mouth crazy.  If you are only confused, frustrated, and slightly twitchy.. well.. you likely won’t get the referral. 

It seems to me that we’ve spent decades and decades socially engineering ourselves with unhelpful help.   Fast forward to the year 2009, where the conditions of life and moral hazards are shadowed only by imminent economic and ecological disasters of global proportions.  Us worry?  Pishaw!  I can only imagine that the eyeball rolling might be on the rise, and then we will see a bottle-necked system struggling to put out the insanity fire.  Good news for all the “ologists” out there. 

I’m disappointed with the policymakers and their reactive care.  What good is their PhD in textbook knowledge when there is no understanding that the body dies without the mind?   I bet Mr. PhD sees the dentist every six months for some preventative maintenance and attention.  Where’s my mind maintenance?  Just a little cleaning is all… loosen up the guk and keep me on the straight and narrow.   Stop me from this inexorable spread into the common pool of lunacy.   Well… at least I will have shiny teeth…

With this project and my plight to expose just a small aspect of emotional wellness (in relation to a cancer diagnosis) I have comfortably fallen into the role of emotional educator and resilience scientist.  Through my discussions and interviews with people struggling with this disease the best cocktail I found to offer them was to approach them with consolation and encouragement and leave them with confidence and inspiration.   We should treat everyone we encounter with the same ingredients.  A very human philosophy aimed to help people help themselves.  To heal their minds and dig deep for their own resilience.  We must become a race of doers and not just helpers.

Imagine for a moment what it would be like to live in a society where most folks were emotionally well-adjusted.   Where well-being had human value,  putting the health of our minds and emotions on the same level as our bodies.  Less crime, less hate, less self-pity and loathing.  That’s just to start.  One might even be able to hear choruses of Kumbaya coming from under street bridges and that stranger that passes you on the sidewalk might just say hello and look you in the eye.  Spend real time with real people talking about real things.  Needs, wishes, desires and even fears. 

What could be more important than validating someone’s existence?  Try it.

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got Cancer? be a-Muse-d!

tvcogecoThis morning we taped an interview segment for the news on Cogeco!  (It will air on channel 23 for Cogeco cable customers next week.)  I was beyond nervous.  I trembled and perspired like a mad dog in heat.  Once or twice I feared I might be electrocuted by the microphone battery pack they had nestled down into my back forty.  And …I sat alone on a stool with football stadium sized lights all around me revealing every unflattering nook and cranny that I try so hard daily to disguise.   

I put myself out there today, outside my comfort zone – WAY outside – and I showed bravery in myself that I haven’t seen in a long time.  I’m staying consistent to my purpose and true to myself.  Today I reached out to people who are suffering.  Hopefully someone will show their own bravery …and reach back to me. 

~uberscribbler

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Understanding meets Hope: A photography Exhibit

understanding meets hopeImages contribute to how we see ourselves, how we define and relate to the world, and what we perceive as significant or differentI decided to document the emotional cancer journey of strangers in order to capture the naked truth of it and then display it out in the open in an April 2009 exhibit for all to see.  Still images overcome boundaries of language, skin colour, age, religious beliefs, education and socio-economic levels.  It is simply put… people looking at people.

 

The importance of revealing the impact of the emotional cancer is to remove some long associated assumptions with this disease as well as help those that have not been afflicted to no longer fear its mystery and become dilligent in their early detection.   Early detection is our most powerful weapon against this disease.

 

I have enlisted the media’s help in order to help me find willing subjects.  Those who are suffering and even those who are dying.  I would also like to include folks that are getting better and some who have come through it but still carry it’s weight from time to time.  I need these same people afflicted with the disease or those suffering its effects to allow me to capture their deepest and sometimes darkest moments and be willing to share those moments captured with others in order to teach truth and hope.  It will not be an easy task to persuade people to come forward, but hopefully in appealing to them and their families, they will allow me (with my unique perspective and understanding) to include them as part of an incredible journey of hope.

 

I have 3 TV interviews coming up in the next few weeks to aid in my plight for volunteers.  (I hope to stream in some video should it be recorded.)  If you know of anyone who would be willing to participate in this project, please give me a call or send me a note.  Thanks.

 

~uberscribbler

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Cancer chasing cancer (An excerpt from my journals)

In 2006 I was dying.  I was diagnosed with a voracious and debilitating disease that ate away at my mind, body and spirit.  I was diagnosed with cancer.  Upon hearing my diagnosis, I knew myself to be dead within 24 hours.  I had been forever linked to a new race of people, a casualty of a physical war upon my body with a stigma of epic proportions.  In a matter of moments my identity of strength, health and confidence was wiped clean only to be replaced by weakness, pity and fear.  Total strangers would sigh their pity as I passed them and even my friends and family would avert their eyes from mine as my last eyelash came floating down before them.  I was alone… alone with death.

 

A diagnosis of cancer brings together a combination of two unfortunate diseases in one – a double whammy of stress and strain.  Physical cancer eats away at your cells with the sole intention of your eventual death and emotional cancer attacks your mind and your spirit but is as equally dangerous and unforgiving. 

 

Not all cancers are the same, nor are all emotional impacts, but what I have determined to be true is that if left unchecked and ignored the emotional cancer can be your death… even if your body lives on.  Physical cancer affects you individually; emotional cancer is contagious and can infect those around you.  I have found this cancer, the emotional cancer, to be the most debilitating, the one that caused me the most suffering, and the most widely misunderstood and untreated cancer of them all.

 

We’ve been conditioned to fear cancer, and we do so dutifully.  We fear – we fear what cancer does, we fear the mystery of it, we fear loss of life, incapacitation and loss of control.  We avoid the discussion, we encourage those afflicted to think positive and we turn our loved ones into warriors insisting that they are not trying hard enough should treatment be failing.  Cancer causes suffering, not just for some, but for all who are touched by it.  There may be varying degrees but it’s not just some who struggle with fear and self-pity while others show courage and strength, everyone afflicted will have moments of each; its only the moments that you see them that you may pass judgement and decide for them.  The emotional cancer is a culmination of all the dark feelings as well as the courageous and hopeful feelings all rolling around together competing to come out on top.  Who wins one day is a coin toss really, and each day (or hour for that matter) can be different.  These dark feelings are where our fears are; this is the mystery of cancer. It’s important to know that the cancer itself is not the monster, it’s our perceptions of it that makes it our reality.  Recognizing our feelings and accepting that we will be engulfed in varying emotions from time to time is the first step in understanding the truth about cancer.  Emotions are raw and honest and there is no shame in being human and allowing yourself to feel.  When you understand this truth, then you can begin to teach hope. 

 

~uberscribbler

 

 

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Long overdue thanks.

I have a considerable number of thank you letters to write.  I have always been a procrastinator when it comes to these kinds of tasks, and I’m not certain why I can’t match my good intentions with the will to actually perform the deed. However, I have always had faith in myself that at some point in my life I would make restitution to all that have touched me.  That faith gives me the courage to continue to face the folks closest to me, time and time again.  At this point in my life it seems almost too monumental – and absurdly unfair – to let it go any further. Besides, I’ve learned some things.

gratitude

Last summer I was diagnosed with cancer.  In the months since then, I have been overwhelmed by everyday acts of kindness. They zoom in on me from all directions.   A kindness that I have never known and that has, at times, overshadowed the ugliness of this disease.  The word “kindness” doesn’t quite seem strong enough.  It’s an almost incompetent and somewhat inadequate description.  There is no word applicable or one that has my need for strength of conveyance.  With the exception of perhaps the word truth.  I have seen the inner truth of a lot of people lately, and I’m humbled and awed by the beauty of it.

The truth I have felt most significantly has been that of my parents.  As an adult, I have wrapped myself in the glory of my own family and have forgotten the once upon a time of my youth.  The way in which you love your own children is the way that you are loved.  Denying it or not feeling your parents love does not constitute or guarantee its absence.  I may have grown up and become an adult and a parent, but I did not leave my youth behind as I might have thought.  It has been here, in me and around me, the entire time.  This disease has given me new eyes to watch with, and a new heart to understand with.  The absolute truth of what I know is that your life is not a linear succession of milestones, but a vast circumference of love and memories.  I did not leave home and embark on my own life, home came with me.  Always and undeniably, I am but a child of my parents.  And through the truth of their everlasting strength and indomitable will, I have returned to their clutches for protection from death‘s threat.  Their arms did not open to embrace me, but had been open all along.  I had only to notice it.  There is no reservoir of gratitude deep enough nor wide enough for me to indulge, so however humbly, these are their letters.  I write these knowing that I haven’t the courage to stand before them and acknowledge what they have done for me, or continue to do.

Dear Mom,

Thank you for life.  Thank you for antiseptic on a scraped knee, years of clean clothes, sweet affection and your on-going, endless love.  Thank you for picking me up from school in that rusty-old-barely-red heap of a Toyota that at one time I thought I might die of embarrassment to be seen in.  For I know now that you came for me, it matters not how.  Thank you for the sleepless nights at your sewing machine, so that I might have new clothes for school.  Thank you for using a shampoo that smells of coconuts. When I’m engulfed in your arms, I’m reminded of good times with sunny days on the beach.  Thank you for tirelessly coming to my appointments, for holding my hand through bad news, and for your brave face through my diagnosis.  You have remained positive and courageous in the face of all that is evil to me.

Thank you for loving my children with such reckless abandon.  I have peace that your love will find them regardless of my circumstance.  Thank you for the times that you did not stand up for me.  Your weakness in those moments gave me the courage to stand up for us both, and showed me that in your moments of great courage, I, too, may show weakness.

As a mother myself, I do understand the all-encompassing scope of your feelings for me.  We have a link and a bond untouchable by any two other people in the universe.  You carried me, you loved me shamelessly through my teenage quirks and forced a smile through my most challenging of temperaments.  And through my grief of this disease, you carry me still.

I am so sorry for the tears that have touched your cheeks and the sobs that have kept you awake at night.  It seems a cruel punishment of nature that a mother should ever know the heartbreak that she may have to watch her child die, that you are helpless in preventing it and can only hold me and hope.  For you my greatest tears have been shed, and my greatest grief has been known to me.  I feel your sorrow as I felt with my own child years ago, mixed with the grief I feel in the possibility of a future separated from my children, by my own death.

Your suffering is unbearable to my heart. It consumes and overwhelms me at levels incomprehensible.  I pray silently in your presence for the courage of your strength.  Thank you for never believing that I have become too big to sit in your lap, and for stroking my hair while I cried for myself in your arms.  Thank you for allowing me to be 5 years old with you, everyday of my life.  I love you desperately and I need you more than I tell you.

Your loving daughter.

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Dear Dad,

You have been more to me than my daddy.  You have been my teacher, mentor and friend.  I’m not sure what it is about little girls and their daddy’s, but I would believe anything you told me.  If you told me that I could grab a star from the night sky with my own fingers, I would believe every word, without question.  Because daddy said so, and I am your little kitten.

You have been the strong and vigil pillar of my life, never wavering.  You have plucked me out of danger and protected me from the boogeyman, real or imaginary.  You have been my hero and I have silently worshipped you.  You, the gentleman cowboy, with your mysteriousness and strength, you terrified me and mystified me… both at the same time.

Thank you for my shiny red toboggan, and for pushing my frozen and happy face down snowy hills for hours after your body told you to stop.  Thank you for giving me the room to make my own mistakes, for not handing me the solutions to my problems but turning me out to find them myself.  This has been an invaluable lesson in accountability, one which will find itself on the doorsteps of my children.

Thank you for always being approachable and giving me your undivided attention whether my rants be purposeful or not.  You have shown me great respect and I hope to be as dedicated to the feelings of others, as you have been to mine.  Thank you for never giving in to me, for never doting on me as daddy’s little girl, and for teaching me to face what life gives me with my shoulders up and integrity in my eye.  Thank you for teaching me the value of a soul, and for the kind nature that has been passed down through your genes.

It has never been easy for me to watch you cry, it feels as though the world is coming apart and all that was once secure is now shaken.  I have been selfish.  I have looked to you through a child’s eye for longer than my childhood.  My daddy is just a man.  A good man who weeps in the presence of a broken heart.  Forgive me for not recognizing the truly remarkable man you are, and have always been.

This disease has burdened your heart with such profound sadness and grief, and I am so sorry for it.  What is a daddy to do when he can no longer protect his little girl from the boogeyman?  Especially when that boogeyman creeps in silently in the night and wraps it’s fingers around her throat.  You admitted to me that you had asked that boogeyman to spare your child, and take you in return.  What depth of love you feel for me that you would beg God to die, so that I might live?  A sacrifice of such monumental proportions that my own soul aches confronted with such purity.  I’m ashamed and burdened with my own guilt that at one time I had offered you, for the life of my son.  My utter selfishness condemns my heart. Forgive me, once again.

For all the greatness you have shown me, thank you for the little things as well.  For shaving your head every time I had a round of chemotherapy.  Not because you would be hairless as I have been, but because you would understand that people look at you differently, and that you, like I, would spend time explaining ourselves to the ignorance of strangers.

The universe holds no boundaries for those that love with conviction, and I shall take you with me wherever my journey leads me and I will remain your little kitten, forever.  I love you desperately and need you more than I tell you.

Your loving daughter.

In writing these letters, I have determined that the vehicle of communication was not as important as the message.  So my regret in my lack of courage is superseded by my need to be heard.   Am I too hard on myself considering all the atrocities that we bestow upon ourselves and each other as human beings everyday?  I am no different, striving to find that perfect peace.  As a race we are a work in progress,  and I find it is a very interesting time to be alive.  Would I really want to live in a perfect world?  What revelations and growth would I achieve from eternal peace and harmony? Where would be the adventure and life altering epiphanies?  We struggle so hard, so that we might live.  Actually live.  We face extreme hardship and adversity so that we might experience unprecedented levels of joy and exultation.  The deeper our hurts, the stronger our love.

In facing cancer, my egotistical mind keeps asking why me?  But really, why not me?  This could be my opportunity, maybe it‘s my time to learn, or perhaps it’s my time to teach.  This lesson may not be for me, but for those who love me and are connected to me.

What greater cause of adversity could there be for me,  than to be able to allow those I love to stand beside me in battle with sorrow, so that they might truly appreciate their ability to live and to love.  What greater service could there be?  In the face of what they could lose, they might find again what was once lost to them, and feel the truth of each other.  And in sharing their truths with each other, there may be an awakening in them.  Something that moves beyond them and reaches out in kindness to strangers, this time for no reason other than that their truth must be told.  Hopefully, one day, it will not take death to loom near to teach us to live.  It is a day that I hope to see.  This cancer, my cancer, I’ve come to accept and appreciate.  It is the tool that teaches humility, even if I am the only student today.

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